About Us

The OPMD Association is a 501(c)(3) non-profit advocacy organization dedicated to raising awareness of Oculopharyngeal Muscular Dystrophy, a genetic, rare, neuromuscular disease. We support the OPMD Community which includes OPMD patients, their families and caregivers by educating the public and governmental officials and by sharing information, studies, resources and potential treatment options.

The mission of the OPMD Association is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and by creating partnerships with research institutions and corporations in order to discover treatments and a cure for OPMD.