The OPMD Association is a 501(c)(3) non-profit advocacy organization dedicated to raising awareness of Oculopharyngeal Muscular Dystrophy, a genetic, rare, neuromuscular disease. We support the OPMD Community which includes OPMD patients, their families and caregivers by educating the public and governmental officials and by sharing information, studies, resources and potential treatment options.

We pursue partnerships with nonprofit organizations, clinicians, researchers and medical communities at the local, state, national and international levels. We work to promote and help secure funding for research, treatments and eventual cures for OPMD through partnerships with pharmaceutical companies and by exploring and securing research grants and donations.